I feel like I might be too simple minded to be writing my thoughts on this book. I cannot call it a review. When I saw the first inklings of promotion for the book and it's title (Hillybilly Elegy: A Memoir of a Family and Culture in Crisis), I thought - finally, someone brave enough to write the unromanticized version of contemporary Appalachia from an inside perspective. Then, among some colleagues and some listserves I belong to, I started seeing negative feedback about its contents, and I wondered if I should even waste my time reading it. As I tried to decide whether I'd read it so I could ethically participate in the conversation, it was quickly clear why I should. The feelings that I was encountering vicariously around Vance's work weren't based on anything that I felt was a validated response. I was hearing or reading comments from people who were reading critical reviews of the work, but had not read the work itself. Other comments came from people who had not grown up in southeastern Kentucky, which is a distinct region of Central Appalachia. It is a very distinct experience to be raised here or raised by people who still identify deeply with this place as their home. Yet, others were discounting Vance's work because he has conservative political leanings and no longer makes his home in the mountains. I had to read the book because none of these things should trump a person's individual and actual human experience as an Appalachian and the conclusions one draws from it. So, I bought the book the next day.
I have to say at this point, I have not read any actual review of Vance's work. I did so consciously so that I could form my own opinion of what I was about to read. I have had some conversations about topics that the content brings up, but not specifically based on what Vance shares in his writing. I listened to a short interview between Vance and Steve Inskeep of NPR because I was curious what this guy had to say about the "Trump Phenomenon". If I disagreed with anything Vance said in the interview, I can't remember. The only thing I remember thinking was that I felt he was hitting the nail on the head in a lot of ways. I did read a short article on the book in the New York Post. I will also share that I had an interaction with Vance on Facebook in a thread about his book. It went as follows:
Kelli Hansel Haywood - JD Vance... I appreciate the recognition that it is really, really complicated. I plan to read your book soon. I think facing issues head on, acknowledging them instead of being offended by the way it looks to others, and telling our own story is the only way to rebuild here. I came back to southeastern Ky to raise my family. It's a choice I don't take lightly and the more people I get to know who are ready to do what it takes (because it isn't going to be romantic at all) to heal this place, the more I hope that I will have a reason to stay.
So, with that background, I will share my thoughts on Vance's work from a "hillbilly" (though I typically don't use that term to refer to my people or myself) who pretends to be literate, but albeit might not be getting the right academic point that has gotten people's underpants in bunches.
I began reading the book with a pencil in hand underlining passages that I might quote when I write this post. I rarely write in books. It's kind of sacrilege coming from how I was raised to feel books are treasures and any marks I might add must be an inscription or some other kind of meaningful addition. The first passage I underlined and probably the only lengthy one I will quote is:
There is an ethnic component lurking in the background of my story. In our race-conscious society, our vocabulary often extends no further than the color of someone's skin - "black people," "Asians," "white privilege." Sometimes these broad categories are useful, but to understand my story, you have to delve into the details. I may be white, but I do not identify with the WASPs of the Northeast. Instead, I identify with the millions of working-class white Americans of Scots-Irish descent who have no college degree. To these folks, poverty is the family tradition -- their ancestors were day laborers in the Southern slave economy, sharecroppers after that, coal miners after that, and machinists and millworkers during more recent times. Americans call them hillbillies, rednecks, or white trash. I call them neighbors, friends, and family. pgs. 2-3
I, like Vance, am from Scots-Irish and Cherokee descended working-class Americans. Throw a little Welsh, German, and Blackfoot in there of the same economic class of folks, and you have Kelli Hansel Haywood. And, like Vance, I don't idenify with the typical picture of "white America" defined as "white privilege." I'm not saying that I don't carry pivilege being a visibly white person. I can dress a certain way and move through any American town or city with some basic ease until someone wants to point out my womanhood, my "white trash" tattoos, or my "funny" hillbilly accent. With that combination, especially the accent, I become the "other" really quickly. It is my home and my people that I have heard degraded to my face when I travel. It is my home and my people that folks in Louisville would refer to as "that Kentucky" which they were adamant about not being. I've been made fun of in groups of people by colleagues and mentors for being this type of American. Add to that the fact that I can claim membership in the Cherokee nation, but do not look the part, and you have a double sense of outsider. Where do I fit, except as among those that do not fit?
So, you have to approach these thoughts of mine understanding that Vance is not writing as a commentary on eastern Kentucky, but more on the state of working-class Americans couched in his own experience as a displaced coalfields Kentuckian. As so many coalfields Kentuckians know, our people are spread all over this country because of the many outmigrations of hillbillies looking for work. Common places were Ohio, Indiana, and Michigan to the north. My own family went south in the more recent years - Alabama, South Carolina, and Tennessee. One set of family members ended up in Alaska due to the military. Yet, just as Vance's grandparents experienced, home tends to always be these mountains even when you have been gone for decades, or even generations.
Vance's family ended up in Middletown, Ohio not very far from College Corner where my step-dad and his first wife spent some time during a period of outmigration from which they ultimately returned. Also, near Dayton, Ohio where one of my Mamaw's best friends from Liberty Street in Hazard, Kentucky ended up with her husband. And, from the time Vance was small, just like most other hillbilly families I have encountered, he came home to Kentucky on holidays and many weekends, It was very rarely those of us still living in the mountains that made the trek to the places where our family members had relocated. It was them that had to come home. All this to say, Vance is writing from a very common experience among eastern Kentucky families. You can take the family out of eastern Kentucky, but I wonder how many generations it takes to get the eastern Kentucky out of the family.
We cannot discredit Vance on the grounds of being "an outsider". As I continued reading, I found many more similarities between my own childhood and his. These similarities were also shared among many of my peers.
I could go on listing similarities for quite awhile, but will stop at these significant bullet points. I call them significant because this many commonalities between my life and a complete stranger's... even so many of my own classmates, cannot be coincidental. The lifestyle Vance describes, along with the idealisms and attitude, among our people is very real. I have heard and come across many seemingly strong opinions about what Vance's depiction of our people will cause in our broader national context. However, I haven't heard or read a single person who was born and raised in the mountains of eastern Kentucky say they didn't like the book. In fact, to the contrary. Many have found it to be very real and even refreshing. While I cannot agree with Vance on some very minut points because we differ somewhat on the political spectrum, I greatly appreciate his bravery in sharing his coming of age with us, with the world.
What I must question is the reactions of the public. First, I do not believe most of the reactions I have heard are coming from people who have actually read the book. I will read the reviews and listen to Vance's interview on Fresh Air soon to further my investigations into these reactions. At this point, I have to ask what it means to be so reactionary when someone shares what has been labeled as the "negative" aspects of being a hillbilly. What I think it means is that the people having these reactions fear an unknown. They fear having to address these real and ingrained issues in our communities when there seems to be no apparent solutions. On some visceral level, they fear that these issues make all the stereotypes true. I say stereotypes come from somewhere. It is only the somewhere is a misunderstood observation rather than an extensively researched and understood reality. So, stereotypes are judgments of what one has seen or heard and not understood. Can we not take the time to share our eastern Kentucky narrative in our own words through our own understanding and claim all of what we are at this point in time without being ashamed? Does everything not have a backstory? In this regard, I wish Vance would have been able to explain the effects that the coal industry had on this region, but Vance did not get out of line in speculating on this. He shares in his book only what he has experienced firsthand. It is honest.
In recent months, I have become very interested in the role epigentics can play in helping us resolve many of these issues that Vance and others (including me) find devastating. Because of this I was very glad to read Vance mention ACEs or "adverse childhood experiences" and how they impact us all through the rest of our lives. Of the list that Vance provides of possible ACEs, I have experienced all of them to varying degrees from one to more times than I can count. Vance writes:
Among the working class, well over half had at least one ACE, while about 40 percent had multiple ACEs. This is really striking -- four in every ten working-class people had faced multiple instances of childhood trauma. For the non-working class, that number was 29 percent. pg. 227
Does this fact make us an ignorant bunch of violent hillbillies? It seems some even among us some would think so. I say no. Many of our reactions come from generations of oppression. Because traumas are passed down in our DNA and triggered by things like ACEs, it is a credit to our strength that so many of us cope at all.
I firmly believe that it will be through accepting the realities of our culture and coping mechanisms both good and bad, and shedding some light on how they came about, that we will begin to heal and find the parts of ourselves that are our assets in order to be rid of the parts that are keeping us oppressed.
As Vance points out in his conclusion, I too believe that it is because of special circumstances that the successes we do experience here happen. These things happen in spite of a great many things. I'm all for holding up these very motivated and talented people and all the projects they are involved with, but not at a cost of allowing mainstream media to be the only ones reporting about our shortcomings. We can focus on the positive all we want and that will not change the fact that there are problems to be addressed and there aren't enough unique opportunities to give rise to an environment that fosters change and healing. Can we not do both? Can we not take charge in reporting and revealing our own shortcomings while also presenting and enactiing possible solutions? Vance isn't judgemental of the people he calls neighbors, family, and friends. On the contrary, he, like I, is very concerned about our future. It was at a recent town hall on Hep C that I heard a government official say that if we began a plan today to deal with the opiate abuse and resulting Hep C rates, it would be at least ten years from now before we'd know if it is going to work. This stuff isn't going away any time soon. In the meantime, how are we going to live with it? Continue to hide it until some outside reporter comes and reveals it like a lesion to the rest of the world?
We do need to create a space for the J.D.s and Brians of the world to have a chance. I don't know what the answer is, precisely, but I know it starts when we stop blaming Obama or Bush or faceless companies and ask ourselves what we can do to make things better. pg. 256
Can I get an Amen?! We will continue to be stuck if we do not act in this way. It will not be a president, a government, a corporation, a new lump of money, or a project that will bring us out of what can be seen as an abyss if you focus on the raw statistics. No, it will be acknowledging that these are people that are suffering, and young people who are being formed by this environment in a way that will forever affect their lives. Who can change it? The only ones with the power is us.
I see J.D. Vance's Hillbilly Elegy: A Memoir of a Family and Culture in Crisis as one of the most important texts written about contemporary Appalachia as it exists in the midst of so few. Yes, it oversimplifies some things. Overall, however, it paints an accurate picture of what it is like to be raised in a contemporary "hillbilly" family. Vance is not saying he regrets being a "hillbilly". In fact, I think he wrote this book because how he feels about his family is exactly the opposite. He believes they are worth the healing they deserve and that their path to healing will have a lot to teach mainstream America.
If you ask people in the county where I'm from - Letcher County, Kentucky, about my family, they would say that I come from a good home and good people. They would be right. I knew love throughout my entire childhood and I know love from my family today. In Part 1 of this series, I shared some of the moments from my coming into adulthood. When I shared the post on Facebook, several comments were about how real it "seemed" or "felt", and how they were sucked into the story. I wrote the piece in second person. I answered them that it felt real because it was; it was my own experience and every bit true.
I shared my personal experience because I am not ashamed of it and I believe it isn't an uncommon one. Part of me believes that the things I described are more related to living in a certain economic class of people and family dynamic in the United States than it is a uniquely Appalachian experience. It is maybe the truly severe bits that I didn't tell of that would fully couch my early life experiences more in place. The experiences I could share of joy and honest sadness would as well. I purposefully did not tell my most tragic of memories. The Appalachian experience gets plenty of attention for the tragedy of it. The unfortunate reality is that this tragedy is most often displayed or filtered through the eyes and mind of an outsider looking in and distributed through the national media outlets. Very little have I seen someone completely embedded in Appalachia and particularly eastern Kentucky telling the story and it reaching far and wide. For, if it were an eastern Kentuckian in complete control of the telling, the complexity of the Appalachian experience would be revealed. It would demand to be thought about instead of gawked at. To be digested and integrated instead of judged and laughed at. The truth is we are a people who have for over a century now have been told that our way of life isn't normal, isn't proper, isn't fulfilling, isn't joyfilled, isn't healthy, is poor, is backward, is ignorant... is less than. So, I ask. What do you expect to witness from the people who live in arguably the most beautiful natural landscape in all of the United States when for generations we have been told by nearly everyone that comes to visit that they can offer us something better, or that we need saving? Then, in turn, they exploit our hard working ways, our strong backs, and our common sense for their personal gain of ego or profit. What do you expect to see? What?
Now, I come to the part where I have to call out the most well meaning among you to think for a moment about what impact you want to make in my community. Why are you here and what do you want to offer us? And, if you offer, are you going to deliver and do what it takes to understand us well enough that you can? Otherwise, please, just enjoy yourself while you are here, make good memories, spend a lot of money, and pass on through. We aren't here for saving or for boosting anyone's ego. We are a people in transition. We will either succeed and be a story that renews the viability of the American Dream for the average and less than average person or we will fail and be a lesson to the country in the many different ways slavery can still occur in this country legally to line the pockets of the rich white men in control while others bank off the tragedy in their own ways under the guise of morality and ethics.
My people have been in the Appalachian mountains since before written record... since before the white man. My Cherokee ancestors made their home in these hills, respecting the land and managing the resources for posterity. My great great grandmother walked with a lame leg from New Echota/Calhoun, Georgia into Dayton, Tennessee at age fifteen. She followed the ridge as her people taught her to escape violence from white men as her mother wasn't able to do and the family who were separated from her through the Trail of Tears long ago and were in Oklahoma on Indian Territory and couldn't save her from the hardship. She had made the trip herself to Oklahoma several times with her parents. So, she walked. No, she ran away to never look back.. From Dayton, TN, she ended up in Hazard, Kentucky where her husband worked in the mines and was eventually killed in them. She remarried a British man there as I understand.
My Scotch Irish people came into these hills to escape the slums and prejudice of the cities. They wanted to find a home that reminded them of the Old Country so they settled in these mountains where they wouldn't be bothered. They developed a strong sense of place here, becoming clannish and protective of one another and their land. It was a sensibility born of necessity that has been passed down in our DNA as a trait that is as natural to us as breath. Many see it as mere violence and stupidity. We know that for us it has been necessary to fight for home, family, and freedom on our own soil more than it has been to fight in foreign wars. It has become our way to be wary of a stranger. It is a way we have survived. So many of us cannot be convinced to resist this instinct because we are not yet comfortable in this country, but we are at home in these hills.
I have spent all but seven years of my 37 in eastern Kentucky. I have seen very little of the United States or the world with my own eyes. I have only seen the ocean twice as an adult. I can't say I will ever see it again with any certainty. I have lived most of my adult life without health insurance. I've paid my own way in this world since I was sixteen. I have had to go to food banks to eat. I have had to use a chamber pot to relieve myself in my own home for months. I have had to have my teeth worked on at a RAM (Rural Area Medical) clinic, waiting all day in very uncomfortable conditions with a thousand or more people receiving medical care in an open very public place. I have lived with a drug addict. In fact, she was my stepmother. She'd make me pay my car insurance twice sometimes eventhough I had record of my having paid it. I know where the money went. She's dead now. I'm pretty sure drugs were the cause. She left my dad beforehand, but she was my stepmother from the time I was nine until I was 24 or so. I know addiction. Honestly, I know too many good and very intelligent people who have lost their lives to drugs either literally or because they are just a ghost of who they should be. People I love. People that have so so much to offer our place. I love them still and my heart aches for the loss of them and their contribution.
I have had to shelter my brother and sister under my arms and usher them into the house like a mother hen because our neighbors, two brothers, would take to shooting at one another. They lived in small campers and peed in the creek and crapped in the woods where we played. I don't know if they bathed. And yet, when my baby sister put a knife through her hand in the front yard, it was one of them to came to her aid using his shirt to put pressure on her hand. He saved her quite literally. It was one of them who worked on small motors and rigged bicycles to be motorized, buzzing up and down the holler. He chased an emu down the holler once calling - "An ostray... an ostray." That was funny. Almost as funny as when he came and demonstrated for us his Achy Breaky Heart dance.
Another neighbor had a hog farm. I watched many a killing there and can recall the smell every time I fry bacon. I put a rusty nail through my foot at their barn once, jumping from the loft. Another let their toddler run in the holler road with a sagging diaper. And later, one of their toddlers would get bit twice by a cooperhead on two different occassions walking through the grass barefoot at dusk. They lived in a trailer that most of the time had no running water or electricity.
I know what it feels like to have the wind blow hard on my face and through my hair from riding on the open highway in the bed of a pickup truck. I know what it feels like to be an adolescent girl and be looked upon by the eyes of a very drunk man and how the room smells after someone has holed up and went on an alcohol and cigarette binge. I know what it is like to share one bathroom and three bedrooms with five adults and six children. I have also seen what it takes to bring yourself out of a dark hole and run your own store as my great grandfather showed me with his Cowshed Trading Post. I know family secrets that would make you cringe.
And, again. I am confident none of this is uncommon. What I take issue with most of all is the shame we are made to feel about images in the media that others don't understand. The shame that comes with having these stories exposed to outsiders without any of the context. Books could be written, are being written, and should be written on how and why things are as they are here. Why aren't more of us being trusted to tell our own story to the world? A set of photos, an article, an essay is not enough to reveal anything much of substance that an outsider can understand. While we are seeing attempts at bringing more fullness into the display of our tragedy as shown in the recent series release by VICE, it still isn't enough to produce much more than gawking.
I put myself through college and I have a bachelor's and master's degree. I educated myself at the encouragment of a few good teachers, the cultural programming in my school provided through Appalshop, and my grandmothers who both encouraged me to be bookish. I now work at Appalshop as the Public Affairs Director of the radio station there - WMMT-FM. As others in our community are aware non-profits like Appalshop are often questioned in this region. As a young person, I would have never dreamed that I would be able to attend AMI (Appalachian Media Institute) or to work at Appalshop someday. Eventhough I had some friends whose parents worked at Appalshop, I was aware that many people there weren't from my town or weren't of families I knew. I knew no one who had gone through the media institute and spoke about it. When I met the kids from the institute, they all were from somewhere else it seemed. Other than a few, it did seem like people from somewhere else documenting our lives. People who had gone to fancy colleges and travelled a lot. People not like me and my family. I was in awe of them and their life. I wanted a life like that.
Things are a little different these days, or maybe they are the same and I'm just now understanding the reality. Most of the folks I work with are Appalachian, eastern Kentuckians, or long time residents. Not all of us graduated from college. All the kids attending AMI this summer are from eastern Kentucky except for one, I think. Appalshop is working closely within the community and with community leaders in a variety of ways. We are helping to initiate cultural programs in the schools again. And, WMMT is making radio that tells our story in our own words as well as the news that is important to us on a weekly basis.
I mention this because we have an outlet for our voice and the truth of our story that has the potential to be seen nationally. We have this resource right in our yard. Yet, I am well aware of the distrust and I totally understand where it comes from. I also think I know how to change that with many in the region.
What I urge us to do as we begin to reframe the stories being told about us in national media is to have a strong voice. Don't shy away from the images like those taken by Stacy Kranitz and displayed through VICE. I know these images are real. They tell a truth. It is a truth we need to address and if I am truthful myself, we aren't doing what we can to tell this story and to address this truth and people are dying because of it. We want to keep images of drug use, violence, and poverty confined to the urban experience and maybe even the urban minority experience, so we can confidently say, this is not us. No, that particular image is not us, but the images Kranitz gives us is. Period. The people in the pictures gave consent to be photographed. Why do you imagine they did? Were they paid and desperate for money? If Kranitz is acting ethically, no. Can we imagine a minute that it is because they are in pain and they want someone to know, understand, and offer some support for finding an answer or simply aknowledge their humanity? Can we think that just for a moment we need to own these pictures? Own them, talk about them, respond to the truth they reveal. I fully do not believe that we can see any triumph in this place until we own the tragedy and stop trying to push it back in favor of the few positive stories we are seeing, that are happening in spite of the tragedies out of tremendous perserverance and unbendable will. These stories should be told side by side as two sides of the same coin. We must expand the story and include even the ones in our communities that do not get told, for there are many. In eastern Kentucky, it's all real and comes from the same beginning.
We can revive a squaredance. We can create a state park. We can grow a pretty garden and sell at the farmer's market. We can promote art and music. All are important and necessary for moving forward. It is important to our children because it helps instill a pride for their place in them which we hope and pray doesn't get trampled by outsiders telling their story. Tell me though, what does that mean to the drug addict sitting in a haze on their bed wondering if they will have a meal today? What does that mean to the man who's life experience is described like this - "A true redneck don't give a shit about nothing but putting food on the table, working, and getting drunk." -Patrick Green from VICE (What it Means to Be a 'Redneck' or 'Hillbilly')? And, then you have a community with an outrageous unemployment rate. What does it mean?
I suggest we all not be ashamed of the tragedy. I suggest that we own it. We don't make excuses for it, but we analyze how it happened to our people and we begin to promote those stories. We praise those lifting themselves up and finding opportunities to be fulfilled here and to help their communities. We also understand that it is because of who they know, unending effort, continuous learning, and a little luck that it happened for them. It's true, and that's ok.. I know because my life could have looked very differently had I not had certain traits and support. I am a lucky one.
I urge us to not jump to defend ourselves every time these types of stories come out. We should stop that because it isn't nearly as interesting as the story itself, it will widely get overlooked, and it will not stop sensational media from being created. Ask anyone living in Compton, Mexico City, Baghdad. Yeah, do we know what life is like there? Instead, put our own images out with our own stories. Be loud until it can't be ignored anymore. Tell the truth everyone wants to hear, but give them the whole picture. While at it, share the story of the kid who made a film about her teenaged pregnant friend, or drug addicted parent, the dirty water coming through the pipes in their home, or how their vision for the future includes tolerance, inclusion, love, and peace.. Hear our young people when they say they don't need protection from transgendered people, but they need some resources to deal with the drug addicted people in their lives. They need some money for college. They need you to care how literate they are. They'd like to know and understand fresh food and clean water. Every year in the hospital in Manchester 200 babies are born. One-fourth of them will be taken to Kentucky Children's Hospital in Lexington because of Neonatal Abstinence Syndrome (NAS) or drug withdrawl. It costs about $53,400 to treat one baby with NAS. Most of that is covered by Medicaid. Then, what about after effects? Tell our children there is a future here when they are born to these statistics and with everyone arguing over whether or not Obama is the anit-Christ, there is a War on Coal, how good Christians don't condone this gay stuff, and how we are going to get ammo after they cut us off. We are side tracked by lies. Our children are being born into statistics we aren't addressing and we want to highlight the positive as a means for what? An Appalachian born child is well aware of what they have to overcome to have a life seen as meaningful to the outside world. We've been expendable for a long time, even to the people helping us. Tell us our tragedy matters and it didn't happen because we are stupid, ignorant, inbreed hillbillies. Tell us you see our tragedy and you see us too and we are beautiful.
Ok, I'm tired. I've been writing almost three hours. Can of worms... out. My contribution may not be very academic. I'd talk more with anyone in person if this at all feels convoluted. This contribution though is real. It came from my heart.
You are six years old. You live in a trailer park on the hill. Sometimes the rats and mice chew the noses and fingers off of your dolls. Your mom found a dead one in a pot one morning and cried. Your friend has told you there is a witch that lives in a house up a side holler that has a graveyard in it. It scares you when you walk passed there with your dad at night. This friend is a little older and right now she is drawing pictures of nude people and tying them to these puffy white flowers that grow on a bush. You call them snowballs. She takes the flowers with the attached pictures and throws them through the opened window of the trailer where the new boys moved in. They're teenagers. She's ten. She wants a boyfriend. Suddenly, as you both are ducked behind the bush, one of the boys pokes out his head and invites you and your friend in. You go in and they direct you to a room. The room is empty all but some boxes and a mattress on the floor. Before you know it, one of the boys throws you down on the mattress, climbs on top of you and begins kissing your mouth. "You want to kiss little girl?" he says. "Here's a kiss." That's how you learn what boys and men think about girls. It won't be the last thing you learn in that trailer park. Far from it.
Across from you sits your sister. She has a different mother and father. She belongs to your stepdad, but you feel like you were cut from the same cloth. You've been best friends since you were eight. You're 14. She's nine months and three days older than you. She says, "I don't know what to do." "What?" you answer. "I'm pregnant." Her boyfriend was much older. She began to cry. "What do I do?" she asked, beginning to punch her fists into her lower belly. "I have to make this go away." "It'll be ok. We'll figure this out," you say. You don't know how, but you know that you won't let anyone do anything to hurt her. You would risk your life for her. No one. No one knows you like she does and never will. You both manage to keep the baby a secret until at 5 months along your sister becomes very ill and the pregnancy is discovered. She spends the next several days on the couch at your house in and out of a fevered delirium. Everyone is really quiet and somehow you are relieved. Later on, when you ask permission for her to come to one of your eighth grade dances eventhough she attends a different school, you are excited when your guidance counselor says yes. As you begin to go in the building for the dance, this same counselor looks at your sister's stomach and asks you to call your parents to come back because they can't let your sister in. The night ends with alarms, cops, a ride in the police car, accusations, and your boyfriend trying to save the day. You are a straight A and B student. Always have been. Always will be. Yet, you and your friends are treated as if you are a problem. You realize that day what people really mean when they call you a "freak". In November when your sister has her baby, your parents make you stay at school. You feel like throwing up because you told her you would be there. You thought you'd be there. When you go to the hospital, they won't let you see her. They won't let you see the brand new baby that you were the first to know existed. There wasn't anything to save you from. Why were they keeping you away? Your sister breastfed and had an unmedicated birth at fifteen. That day you learned the power of a woman from a teenager. From that day on, she has been your hero.
You find yourself stretched across an unmade bed with your friends half dazed in a trailer heated by a coal stove, covered in what can't be just simple mess - it has to be debris? There are places where the daylight seeps through between floor and wall. Cats are on the counter eating some foul smelling leftover chicken. Something has to have happened here. Right? Nothing happened there but life, the life of teenagers unsupervised by a mentally ill middle aged woman who very occassionally raises her head and mumbles incoherently from her place stretched out on a couch as you and your friends pass through? This is normal and every day here. The boys who live here write poetry and think deep thoughts.
Working at McDonalds pays your rent. You've been working there since you were 16. Now, you are 18 and living in a house with four other people and paying your way through your general education courses at the community college to save money. You got a Rotary Club scholarship. It paid for your books. You'll spend the summer wondering how you will emancipate yourself from your parents so you can use only your income on your FAFSA and actually receive enough financial aid to pay your way through college. No one is going to pay it for you The only college money you had was from your great grandmother who took it from you and allowed others to spend it when you decided to move in with your dad in order to get away from a bad friend situation when you were 15. Now, you pay for everything. Medical bills keep coming from where you cracked your tailbone and realized after going to the hospital that your step mother really wasn't going to help you pay for it. In this moment you are sweaty. You smell like french fries and dehydrated onions. Your manager has had you and another female co-worker scrubbing the stainless steel and baseboards with toothbrushes to prepare for a health inspection. You both are begging him for a break. With a greasy smile, he says, "No, bend back over there and keep scrubbing so I can see that ass." Your heart burns, but you don't know what to do. You can't walk out of there just yet. You have bills to pay and want to go to school.
At the trailer park where you live a bleach blonde woman is your neighbor. She listens to the same Uncle Kracker song over and over so loud that you can hear it inside your trailer. It drives you nuts and makes you laugh at the same time. Her husband is a Mexican man. He's nice, but seems inebriated most of the time. They have twin boys. One of them has fetal alcohol syndrome. His mother shares that with everyone she talks to. He's sweet and reminds you of a wolf. The boys push their bikes up and down the lane and in circles instead of riding them. They did have motorized riding toys, but they got reposessed. You didn't know those kinds of things could be reposessed. You are studying English Literature at one of the closest state colleges to your hometown. You just got married. You are twenty. You had been dating your husband for five years. You both hated your off campus living situations and wanted to live together. You both came from families who would look down on that. It didn't much bother you, but you didn't want to disappoint your dad. Your husband gets some school money from his parents and they helped you get emancipated for your financial aid, so you definitely didn't want to offend them. So, one day, when he was helping you dye your hair burgundy, you asked him if he wanted to get married. He said yes. So you'd have an engagement ring, your sister talked a guy who was in love with her into buying one of the $99 diamonds at Wal-Mart. You wore it long enough to show your parents. Now, you have a nice little trailer all your own. $178 payment every month. But, it's yours and you can relax a little that there is no one. No one. No one you have to answer to anymore... but your husband.
Our family gathered to wait with us. It was snowing, and all the local buses were on calls. Our drivers came from Elkorn City to Prestonsburg to pick us up. We waited over two hours after getting the news. I had time to explain to Ivy about surgery. How most of the people she is close with have had surgery. How she was born and alive because of surgery. How she's strong, and I won't leave her side. I would never leave her side.
She slept on the ambulance ride. I texted with some of my mama friends and family a little, but I mostly watched her sleep. It was hard to reach her where I was belted in, but we had the kindest EMTs with us, and the man in the back also had three daughters. He'd reach over and run his fingers through her hair every now and again. He won't know how much I appreciated that he wasn't afraid to touch her for me.
Like I said, I planned. What would this look like? I had only been with my job since October 2015. I guess they'd just have to let me go. I had been a stay at home mom for 10 years and nothing like this had every happened to us then. Now, I had made the decision to change our entire lifestyle so I could find fulfillment and a purpose beyond parenting, and this happens. As my mind is always analyzing, I asked - What is Universe trying to tell me? Have I become a neglectful parent in my pursuit of engaging work? Am I a selfish mother in even considering how this all will affect me?
Thank God, it wasn't cancer! Ivy is on the mend. University of Kentucky Children's Hospital and her surgical team were amazing. She had a 6cm vascular abonormality that was a total bizarre fluke. They removed it all, and now, almost two weeks later, you can only tell that she was operated on because she has four little incisions covered with surgical tape.
We got home on a Monday evening late. I went directly back to work the next morning. I didn't want to go. I wanted to stay, but now, we are dependent upon my income. My income pays for all the new things in our life. A house that meets our spacial and privacy needs, tuition for cottage school, babysitting, food, insurance and my medical bills, my supplements and medicine, and gas money. I can't not work.
Again,because we can't do without this income, I thought, what have I done? I had to think on it awhile. I came to a conclusion that I had come to months ago as I was making the decision to go back into the workforce. It doesn't matter if I am a stay at home mom or a working mom, I'm going to have guilt placed upon my shoulders by myself and by society for all the things I'm expected to be and cannot. We cannot be everything - even to our children. Becoming a parent shouldn't mean we are expected to. Then, I realized, being at work was a kind of relief. I wanted to be both places, actually. At work, I could breathe. I could focus on something a little less heavy for awhile. I could see something through from beginning to end.
I remembered an essay in _Brain Child Magazine, online that I had read back in September before I knew I had gotten my current public affairs position. Aubrey Hirsch writes:
I’m learning a lot, too. The big revelation for me came the first time he woke up on a Saturday morning and, as we were lazily playing in our pajamas, said, “I want to go to Melissa’s!” Movies and mom blogs had prepared me for this moment to be heartbreaking, but it wasn’t. It was totally fine.
Before she ends the essay this way, she wrote, "Watching another woman cuddle and comfort my son didn’t feel bad; it felt great. I knew he would be fine and that Melissa would take good care of him." With those lines, I was reminded how I'm not a natural nurturer. When my own mother was caring for my dying grandmother, she broke down in her stress and grief and said, "I'm not good at this stuff. If I had wanted to be a nurse, I would have went to school and become one!" I realized so much watching my mother caring for my grandmother, and when she spoke those words so much acknowledgement poured through my soul. Hugging, rubbing, touching, holding... it all wore her out too. She too had to make an effort to do it in an extended way. I realized it wasn't that she didn't want to hug me growing up, but she got tapped out quickly. It didn't mean anything was lacking in her care of me or her love for me. It just meant she would show it in different ways that aren't typically associated with the act of mothering, and she did.
I hadn't thought I would be a mother up until a few months before I began trying to become pregnant with my first child. My plan was to be a writer. For various reasons, plans change. In this season of my life, I'm revisiting the dreams of my early twenties. Some would call that a mid-life crisis. Others might say I'm finally accepting myself. The biggest point is that I don't have to feel guilty for it. In fact, I have come to understand the huge contribution working mothers make, and how it actually is more difficult in many ways than being a stay at home mom. Mentally and emotionally, being a stay at home mom almost devastated me. It brought me to a very dark place after years of denying to myself that I really felt the way I did about not pursuing my interests.
You DO NOT have to be a martyr to be a mother. I wish for the life of me that society would help us convey to our daughters that you DO NOT have to be a martyr to be a woman. For if you find yourself a mother with a career or job, you may also find yourself holding the brunt of household chores, cooking, bill paying, errands, and outside family commitments. Going out and finding yourself is just another thing to add to the plate that is already spilling over the edge. Yet, it might be the most important piece in being not simply a caregiver, but a role model for your children. Being a role model can be achieved in the home and outside of it and will be particular to any given woman.
I'm still trying to find the balance of being both in the home and out of it. The truth is, I'm going to give up most of the yoga classes I teach so I can be home a few more hours in the evening. Mothers need rest and cuddles too. Even mothers who get tapped out quickly. We all need self care, but from what I see, especially women. Pursuing the interests and hobbies that help us nurture ourselves so that we can nurture our children and loved ones.
Hillary Clinton, back when I was younger was known for saying, "It takes a village to raise a child." She is right. Back in the day, the whole holler watched after your kids while they ran from house to house and hill to hill. Only since we have become nuclear families and neighbors with closed doors have we lost the village mentality. That doesn't mean that it still doesn't take a village.
Things happen, and I will be the mother who deals with them as they come. I will be the mother who seeks and finds herself. I will be the mother who shows her daughters that a woman can be whatever she wants without the permission of anyone. I will be the mother who knows and understands that we are each unique and being a good mother simply means providing an environment where your child is nurtured, safe, fed, warm, and loved however that may appear.
Two days after my birthday in 2011, before I became a mother for the third time and that birth along with subsequent events sent me into this bizarre realm of simultaneous excited joy and the personal space of death (I've not maintained spaghetti arms - LOL.), I received my spiritual name from the 3HO organization. I read the name - Hari Dass Kaur, but I felt disconnected from it, disappointed even. The email read:
You have been blessed to live as Hari Dass Kaur, which means the kind, creative and prosperous Princess who loves to serve God and who is God's Lioness.
Hari Dass Kaur, the very essence of it's meaning is vague. The names are translated from Gurbani (in most cases) - sacred language of the Sikhs- using the Gurmukhi alphabet - sacred alphabet of the Sikhs. However, there aren't literal translating capabilities using the English alphabet, so it is tranlated in order to achieve the nadh, or the sound current of the name, which is the most important part. This means it is more important that the name be pronounced correctly than spelled a certain way. The names are meant to lead us more fully into our destiny as we adopt them as our legal name, a name we use, a personal mantra, a prayer, a meditation, or any combination of these. The more we speak or hear this spiritual name, the more this destiny becomes our reality.
"Hari" is one of the many names of God (Source, Creator, Universe). It is the aspect of God that actively creates or takes away and in taking away creates a new thing, being, or situation. And, as the email said simply, Dass means "to serve." I couldn't help but think, why else is anyone here? We are here on the whim of the Divine no matter how we understand what the source of our existence is. I closed the email and had looked at it only one other time until a new virtual friend of mine reminded me of the 3HO spiritual names and I remembered I had one.
About two weeks ago, I opened that email again. After all that I have gone through beginning with the triumphant birth of my Gweneth, and the sweet bliss that entering into the realms of death gave me... My midwife being arrested and charged with murder when the birth of a baby she attended directly after mine ended tragically. The case being drawn out for three years without a trial. Her being on house arrest and in a county jail for 10 months. Me conversing with those working on setting her free. Opening my life up to these strangers. The emotions involved. My PTSD being triggered which was still very real from the first time I became a mother. My realizing I had no business being a doula, birth advocate, or childbirth educator anymore as my thoughts on all of it were drastically changing and I had a ton of inner work to do. This thing which had become my identity falling away much to my relief. This resulting in a constrained sense of freedom that wanted to be expressed. Extreme ups and downs as I fought against accepting and expressing the emotions that would lead me to this freedom. Excessive amounts of physical and emotional pain that made me wish for death. Pain like I wouldn't wish on the people I consider my worst personal enemies. Working to fight this disease (Hashimoto's) that keeps trying to put me in a place of weakness. Finding a way to begin speaking my truth. Asking my husband to see and hear me again and also be present. Knowing that I was strong enough to expect that because I deserve that. More emotional extremes that made me feel like a lunatic. Becoming a public affairs director for WMMT - a small community radio station. Sending my daughters to a cottage school. Moving into town rather than living off grid. Exposing myself in so many ways to more people than I ever wanted to... I understood that name, Hari Dass Kaur, for the first time.
Regardless of what your belief is in a Divine Intelligence or even that of a seemingly miraculous, but very explainable science, I think we'd agree that if we aren't living in our Truth (not being true to ourselves), what's the damn point? Why even live at all if we don't allow ourselves the freedom to be the fullest expression of who we are? If we aren't allowing this quintessence to be expressed, this embodiment of life force that is uniquely ours from the moment we opened our eyes/third eye in this life, we aren't only short changing ourselves but everyone else in our life. Hari Dass Kaur (the kind, creative and prosperous Princess who loves to serve God and who is God's Lioness) might be the hardest thing I have left to express in this world. I've learned to express emotion. I can complain with the best of them. I love words. I love writing words. I love the radio and making stories for the radio. I adore art and making art. Music pervades my soul. I enjoy feeling anger and expressing that to anyone ready to listen when the time is right. Expression isn't hard for me. Allowing my Truth to be the expression of my life no matter what that means for me, my friends, or my family, that feels scary.
I am realizing as I am getting answers from the medical end of my health and emotional issues, that what I have been experiencing over the last four years, but very intensely since Spring of 2015, is a kundalini awakening. If anyone clicks on that link, I'm running the risk of being seen as a "nut". That's ok though, I don't care. I'm used to being seen as a nut in most ways. I fly my freak flag with pride and have since I was very young. However, I'm also a serious person and hope to be taken seriously, not made fun of. I know that someone will see this as beyond eccentric and into the silly. I run the risk of friends, family, and colleagues seeing me as someone lost. Kundalini awakening is true though. I'm in this process right now, and it isn't at all simple (though not everyone experiences it the same way). I hurt on many levels. I long for things to feel balanced. Until I realized that kundalini awakening was what I was experiencing, I was perfectly fine with death as a solution to what I was feeling, though I didn't want to inflict it upon myself. I was tired and didn't want to try to overcome anymore. I didn't want to fight. I didn't want to cry alone, or whine to my friends on Facebook and embarrass myself. I didn't want to experience anything but nothingness.
Now, I feel I have a plan. I have a way to exist. I work on seeing this awakening process through and I become the expression of life that I was meant to be. Through all of my struggles, sadness, fighting, winning, feeling, joy, pain, learning, I can be of service to the Most High. That Higher Power that is in us all. That Truth. I can be there for others. I can use my gifts and experiences to reflect back this Truth to others so that they too can see it in themselves, knowing they aren't alone. The thing is, I don't worry about what this means. I don't worry about more pain. I don't worry about loss of any thing or person. I'm not concerned about suffering. For what I know is, I am complete and this life is a brief moment in the expanse of time and all that is given me is purposeful to an end goal. This isn't just some meaningless accident of tragic chaos, suffering, and pain. I'm capable of working through all this with the help of those the Universe will send me who want to support me through each stage of this journey. I know I will find that place of peace. Now, hope has returned in the name, Hari Dass Kaur.
“The moment you touch your soul, you become fearless." -Yogi Bhajan
This past summer and early fall, I gave myself the space I needed to get in touch with my soul. I found there a fire burning so bright and asking me to change my whole life to feed it. I made some significant changes. I went from homeschooling to working mother. That was the biggest. I decided to move on the grid. I'm packing today. I began teaching yoga, and I applied for and received a grant from the Kentucky Foundation for Women to finish an essay collection I'm working on concerning events in my own life as a rural mountain woman. I feel the essays will illustrate the universal experience of being a woman. My 3 year old goes to a babysitter 3 days a week now. Between yoga work, driving, and my work as public affairs director at WMMT, I'm doing this thing 50-60 hours a week.
Another gift I gave myself during this time, was to be honest with me. I searched my heart and let myself be free to experience things my heart longed to experience. We don't have this freedom all the time, and when we do it is intoxicating. I'm 37, so maybe what I experienced some would call a mid-life crisis. I'll be a lucky person to get another 37 years, so maybe it is. For me, it held real meaning. For the first time in a long time, I gained the feeling that there was something to hope for, not just for my daughters, but for myself. I felt like I woke up and had decided to come out of the shadows to live.
However, there were some moments for those who were attending to my needs that became frantic. What I was experiencing while they were assessing my bleeding and getting it under control was bliss. My body grew warm and fuzzy. My ego retreated. I felt whole. I didn't care if I continued on in life in the physcial body. I felt like I was completed. It is very hard to describe, but I haven't felt anything as good before or since. What makes it even stranger to talk about is, if I hadn't been tended to. If I had been alone to care for myself, I likely would have bled too much and passed on. In the moment where the veil between worlds grew very thin for me, I felt most at peace. That makes people uncomfortable. That makes it hard to share because there aren't many who understand.
This summer, I began finding a way to live and recreate those feelings of letting go completely. It isn't as easy to replicate in life as it is when your body actually is letting go of its life blood. Life is complicated. I'm a realist. I fought to keep that energy going, but it became just embers and I've had to accept that for now. I couldn't control the death of it and I've taken that in a hard way. I've sunk into a dark and grieving place. I'm not a crier. I've been crying a lot lately. The hope I built has been put away. I'd say it is gone, but there's always the possibility she will return. She stayed in Pandora's box after all. I just have to not wish for her anymore. I find myself thinking more and more about those moments. "Kelli, stay with me," she said. I thought, why? I decided I didn't care to stay and if it was meant that I go, I'd let it happen. "Just a minute," I said. Another minute in complete surrender. I long to go back there. I'd happily go back there unafraid.
I was fighting tears Monday while driving the girls out of the holler. Right as we were going into the creek, I noticed what appeared to be an old weathered bone on the flat rocks in the shallow part of the creek. I collect bones, skulls, and other natural oddities, and I stopped to get a better look. I opened the car door and discovered this very heavy statue. It's been either buried or in the water a long time. It was painted at least twice. Once red and once black. It had also been mounted to something. Maybe a fence, entry way, or gate. It looks like it is holding a staff or spear. A resting warrior. The Universe had sent me a gift with no explanation of how it made it there on that day for me to find. Universe told me to rest. To be patient. It's ok.
Then, I get word from the artist Bonita Parsons that someone who wished to remain anonymous had bought this piece of art from her and asked her to send it to me! I adore this piece and when I found out I cried. I feel so unworthy of such a gift. I socialize very little. I don't talk on the phone even with family and friends I want to talk to. I forget to answer some messages I get on Facebook. Very few people really know me. I am as a ghost and very alone. I have no idea why someone was compelled to gift me this. It makes me feel very thankful and at the same time sad. When I write about my own life, I write it honest. It isn't a bad kind of sad, but it is a type of sad. I've cried several times over the receipt of this gift. I simply don't feel worthy of it and would like to understand why it was given me.
The Universe has gifted me twice in a week when I just wanted to completely give up. I don't want to stoke the embers. I want a lobotomy. Yet, Universe is telling me that my life is a gift. Don't squander it. It is ok to be sad, but it isn't ok to take yourself away from the collective before it is your time to go, whether you do it metaphorically or physically.
I discovered with certainty this summer that my totem animal is the crow. Crow medicine and those who carry crow as a totem can be intense. It's true. It's not a thing we can help and it comes to use by nature. Crow crosses the veil of existence on the regular and is thought to live outside of time and space. Crow carries an honest message and doesn't care to deliver it. Crow is lonely, a loner, but never without work. Crow has magic. People come to us in private to hear their secrets. It's kind of like what I imagine a priest in the confessional to feel, except we don't absolve or give penance. We acknowledge, accept, and help the processing begin as best we can while still being what we are.
I had a dream this week. A woman with a clipboard met me at a convention and said, "You've been idealized." I got so mad at her I could have hit her. I turned around and went back to the room I had just left instead of entering the convention. I've been worried about what she means. I hope that isn't true of me, and yet, when I receive anonymous gifts, or am told I inspire. It is hard to swallow. I'm struggling with my inner light. I'm just living life as best I can right now. Nothing I'm doing is special or beyond what any other human is capable of. I've been called by some younger women a "hero." That makes me very uncomfortable. I don't understand where it comes from, or what I'm supposed to do with that fact. It's hard.
This week though, Universe told me I have a job. My job as the holder of crow medicine will include these things and it will include them whether I am experiencing the light or the deepest darkness. I hear the crows cawing as I'm writing this now. I can't not accept it. It's what I am. My heart won't let me say, no, as long as I am living. It's just that I don't feel that character in me. That sage hermit woman in the woods who holds the secret the adventurer hopes to find. I've not gotten the ability to fully stand in my own light. Maybe I never will. How can I be anything to others? How can I do what I'm asked while at the same time feeling I have no outlet for it myself? Words though powerful are never enough and that is all I have. Typed or written words.
This month marked 21 years since I told my husband I'd be his girlfriend for sure. I had just turned sixteen. We married when I was 20. In June, we had been married 16 years. I used to share those numbers at every opportunity that arose. I'd share it like an accomplishment for which I should receive an award. Yet, most of the time it was taken as some kind of impossible feat we had managed to pull off. "You two are so sweet." "You were made for each other." "You've got such a great man/woman." Those are the comments we get, and to be honest, I'd get angry sometimes at those assumptions. Then, we get the questions about how we do it. Do we argue/fight? Do we disagree? Do we aggravate each other? How do I get someone to stay with me?
I am most definitely not qualified to give relationship advice. Simply because I haven't bailed on my husband, and he hasn't bailed on me, doesn't mean things have been, are, or will be fabulous. I suppose we are both pretty loyal people by nature. That might be one thing that has helped us remain married. We have some common interests. We have children. We also respect others who are at least attempting to live consciously. We are also friends. Long time friends. You know, the kind of friend you have that you'd forgive for almost any act of offensive and even harmful results to you or others. You just know each other that well. You know where actions and behaviors come from. You know when someone is acting from a place of self control or out of control.
I come from a "broken" home. My parents divorced when I was eight. I have spent most of my life lamenting their split. It created a lot of uncomfortable and sad moments for me and my siblings/step-siblings. However, in my experiences of the past year, I have come to realize that my parents divorce wasn't the fault of one of them in particular. It takes two to make or end a relationship. I released so much of the fear, anger, and sadness in my heart around my first nuclear family not making it. I opened to more fully embrace a broader definition of nuclear family and even release arbitrary expectations I had put on myself as someone's wife. Self sacrifice can only go so far in a relationship before it turns what should be a mutual compromise into an unhealthy harboring of hurt feelings and disappointment. For the first time, I understood in the depths of my soul why my parents' relationship didn't stand in the storm. It was an incredible moment of healing for me.
People tell me and ask me about John being my soulmate. I have always answered that I guessed he was, and I still do. What I understand now is that he wasn't my first soulmate, he isn't my only one, and he isn't the last one. He is one of many persons of all genders with whom I have a soul contract. The following quote is from an article that explains soul contracts and sacred contracts, which I have come to firmly believe in on both the intellectual and spiritual levels. It just makes sense to me given my personal experiences and interpersonal ones as well.
These are people who become key to the progressions in life like your parents, certain friends, romantic partners, spouses, and siblings. These souls can also be people that you only know for a brief time but who have an impact on your life and open up opportunities related to your Sacred Contract.
I don't know for how long I will have a deep connection with anyone with whom I have a soul contract. It is something we, hopefully, will mutually decide if we have respected one another and have continued to make an effort to see the other's wholeness as an individual.
Being married is a tremendous amount of hard work. It's an agreement between two people to devote themselves to making a life with one another and always consider the other in making decisions that involve everyone living under their roof. It sometimes requires us to delay our own ideas, druthers, or even comfort for the sake of the couple/family as a whole. It demands open communication and when that isn't in place, things will be guaranteed to be extremely unhappy or fall to shambles. In order to maintain a romantic relationship with someone, you MUST respect them. You MUST make an effort to be a witness to their life, emotions, and dreams. You MUST be willing to meld them with your own where you can. You MUST be willing to bare witness to the others erotic and explore it with them. Otherwise, if we cannot make exceptions for our partners, or we do not feel seen, wanted, or respected by them, some action needs to happen.
In this life, I have loved a number of soulmates. I still love them and always will. I will love them for what they taught me. I will love them for the time they spent with me, and their willingness to see me beyond what the average person opens up to seeing. I will be grateful for what I share with them.
I've realized that love isn't something that should be controlled. We all need to feel wanted and cared for, and we can all find that if we open ourselves to loving and being loved. We cannot force another to accept our love or force someone to love us. That's the beauty of it. "It hurts so good." Those individuals we grow to love have to be ready to accept what we are offering. The need is there in all of us, but it is the want that matters when it comes to love. It is the want and the ability to acknowledge that one is worthy of another's love. If those things aren't there, there's a forcing involved, and the relationship will be strained.
After years with someone, sometimes complacency can occur. One, the other, or both of you can become too satisfied with how you've formed your life together that you fail to see the reality of your own or your partner's feelings. Depending upon the personalities in the relationship, one partner can feel like things are going well and the other like they are drowning. Blindness to the others reality can occur. It can alternatively result in arguments that go nowhere. If we are living life on autopilot, we won't understand what is happening, proper communication won't occur, and the relationship will be unfulfilling or end in an unhealthy way. If you choose to make a life with someone, be willing to learn yourself enough to know when you need to open a channel of frank, respectful communication and when it is time to walk away out of love for the other and yourself.
In this world, there are too many strained and contrived relationships. There are too many that should have never resulted in marriage and many more that ended needlessly. There's so much heartache in this world that none of us should endure a relationship as a martyr. If we are going to raise the next generation to be strong, independent, comfortable, and unembarrassed to love, we have to show them that love means many things. Love is the ultimate strength. Mothers and fathers shouldn't preach contempt for one or the other to their children. If they at one time cared enough for each other to make a life and to have children, they should continue to respect each other if at all possible. Again, it takes two. If the partner is unwilling to act in a way that allows friendliness, it isn't something that should be taken out on children.
I don't know what the future holds for my family. What I hope is that I have partnered with someone who will always remain my friend and someone who I can always hold the deepest respect for. I think I have. I also have to trust myself enough to not be so self sacrificing that I become sad and stifled, or so bent on my own desires that I sacrifice the good of my family and the person I partnered with. I pray that my partner will do the same. What I want people to know who think things are perfect just because you can give a big number of years, or because you've been with someone since you were a teen to know is that it isn't cute. It isn't always happiness and roses. Many times, it isn't even sweet. What I also want to say is that is okay. We're all growing. Sometimes we grow together. Sometimes we need to grow apart. The most important thing is that we do our best to live consciously, and acknowledge the Divinity in others. We have to see our impact on others. We have to try to understand ourselves. We must have a deep desire to share ourselves, but to also provide the nonjudgmental arms for another to be vulnerable in. None of these things are easy. It's all hard work. Relationships are hard work. If one lasts many years, it isn't a coincidence or a fluke. It isn't a fairytale. It isn't guaranteed to last another day.
Think of it this way. Our paths cross like a web. Some of our paths will be connected always. Some only briefly. Yet, each thread is needed for the whole design to appear. We need each and every person in our lives. They offer us a piece of themselves as a lesson to cherish whether hard or simple, devastating or sublime. Be thankful. Be thankful and grow in your personal understanding. Grow in your ability to act from a loving place in all areas of your life. Do this, and you will find your many soulmates and have a life filled with love. As bittersweet as that might be, it is our truth.
Today, I've decided to give up fighting. I'm on day 3 of a another migraine. I'm home alone with my girls who are getting much better from a bout of upper respiratory illness. They are giggling and horse-playing. I need to work on a radio piece for my new job, but this week has thrown so much at me, I need to clear my head first. So, I come here to write. I also took an Imitrex. The medicine hasn't been helping. I hate taking all this medicine.
A good friend's mother and a regular in my yoga classes, my chiropractor, and some folks in my online support groups for Hashimotos urged me to get my thyroid scanned. I'm on thyroid medicine and my thyroid had never been palpated nor had I had an ultrasound of the thyroid. This last year I have had a few CT scans, 3 x-rays, 2 MRIs, and countless blood tests. My main condition which I MUST have daily medicine for had never been evaluated by anything more than a thyroid panel blood test. I could write a whole other post on my frustration with this fact, but I will just say this. If you work in healthcare (medical, mental, alternative, or spiritual), listen to your patient/client. Even if you believe what they are saying is a crock, listen with all your effort. In their words, you will find the next appropriate steps regardless if their words are medically meaningful to you.
Last week, I had my first thyroid ultrasound. I had been complaining of tightness in my neck, difficulty swallowing my medicine and some food, dizziness, hearing my pulse in my right ear, and the feeling of being in an airplane taking off in my right ear as well. It's messed quite a bit with my hearing. I was prescribed allergy medicine and had an MRI for that complaint. I don't have seasonal allergies. I never have. I very rarely even get a cold. The MRI showed normal blood flow in that region. The symptoms didn't go away even when I gave the allergy medicine a chance despite feeling I didn't need it. I didn't think these symptoms were something I should have to just ignore the rest of my life. Sometimes the swooshing and pressure change in my head is impossible to ignore. Being a yoga teacher, it affects my balance and impacts my practice. It also makes it hard to talk on the phone and at times in person because I can't hear the other person. That's not normal. That's not ok.
I got a call Friday that my doctor wanted to review my ultrasound results with me in person. I went in this past Monday. These are the results. Pardon my coffee stains. I'm a little obsessive when it comes to reviewing my medical records and I had an accident.
I have multiple nodules that are small in the left side of the thyroid - "hypoechoic areas". Lo and behold, I have a complex mass of a significant size (though apparently they can also be larger) in the right side of my thyroid. The radiologist has recommended a fine needle biopsy guided by ultrasound to rule out cancer. It will also need to be assessed if my thyroid needs to be removed even if the mass is benign. If you look at the size of the mass in comparison to the size of the right side of my thyroid, you can see why it is something that needs further testing.
Many members of the population have nodules on their thyroid. Not all of these people have been diagnosed with thyroid issues. However, people with nodules measuring on the larger end and who have a history of thyroid issues, are the most likely to have a malignant nodule. Malignancies occur in few cases compared with the commonality of thyroid nodules. I'm supposed to get my appointment for the biopsy today, and at 3:16pm, I still haven't gotten the call. I'll be traveling to Lexington for the biopsy. It's a 3 hour trip.
I'm starting my first round of employment in a decade on Monday, and I am just now getting this news. For almost a year, I have been having symptoms associated with these findings. I can't begin to explain how angry I am that I am now going to have to deal with this at all. My hormone numbers were improved in my last bloodwork. I had several months of feeling better after adopting an autoimmune paleo diet and a no-holds-barred 7 days a week yoga/meditation regimen. I've added herbs and supplements, cut many of my favorite foods, and tried my best to surround myself with people and activities that feed my soul. I thought it was working. I suppose it was a little.
To me that seemed like a reasonable option. I was done with spending half of every month in pain with the headaches. I told Creator that night that I would take on anything if it helped me move passed this pain. I told Creator I'd accept cancer, brain tumor, craziness, aneurysm, all of it. I'd accept it because it would be a diagnosis and with a diagnosis I could have a plan. Whether I lived and got treatment or died, I'd have more freedom than I was currently having. After seeing the neurologist, I got some improvement in my headaches with medication, but now I have had a headache 10 of the last 20 days. Back to the headache from Hades (not that all of them aren't bad, but I literally would've downed a bottle of pills and died if I hadn't had the ER option that night). I told Creator that I'd use whatever I was given to improve my life while I am here and to try to improve the lives of as many as I can reach through my experience. I said, "Please, bring it on." A diagnosis big or small was the only way out I could see aside from death. Yes, it's a dark place to be, but it isn't a godless place.
I still don't know what I'm dealing with, but I'm closer to an answer. I don't know what road lies ahead. All I know is I am tired. This year I have lost 2 grandparents, 1 grandparent-in-law, had 2 aunts and 1 uncle diagnosed and battling cancer, 1 sister with a cancer scare, a niece with blood clotting issues in the brain, and 1 sister under immense stress and battling Graves disease. I am currently grieving another great loss that leaves me recognizing how alone I really am. Surrounded but alone. All my close friends live away from me and are busy people. None of us enjoy phone calls. My husband must work regular hours. My parents are busy working and caring for the other kids in the family. I've always preferred being a loner, but sometimes, I wish I could just sleep in someone's arms and not have to tend to anything.
breath. Strength comes from the breath and if you become a witness to your inhales and exhales and your body's reaction to the breath, you will discover relaxation and the panic mode dissipates. It is always good to concentrate on basics, and just observe the breath connection from head to toe. Just lay on the floor, stretch and breath, and be a witness. Understand you are strengthenIng inside out. We all should do this on a regular basis, but, I think we view this as no effort towards our practice, when it is the most important part. You never lose a gain...it remains with you."
I stopped and realized that all the pushing, making myself keep going, and searching for answers beyond the medical is wearing me out. I realized that I have not focused on one of the most fundamental aspects of yoga or spiritual practice - equanimity. I have not found my balance. In all the striving, I have built my willpower up so intensely that I do not know when to allow myself a break or to stop, celebrate, and live in my gains. I just plow down the next row. Start trying to fix the next biggest issue. I want so badly to be a light to myself and others that I think I have let my ego get out of control. I have overestimated the impact I can have on a life, including my own. My efforting will only go so far, if it doesn't create space for me to also take the time to live what I have learned. Sometimes, we can try to make up for the lack of self-esteem and self-worth in our lives by building other parts of the ego like self-confidence. I have been relying on my own strength and my own mind to do everything for myself and others. At this moment, I really just want to be loved and carried for awhile. I'm done fighting. I'm going to breathe instead.
I have to make a plan. I have to hone my spiritual and yoga practice. I have to re-think my self care.
"You can't fully appreciate the light until you understand the darkness." - Black Yoga Asanas Ritual Vol. 1
If you would like to read more about this particular aspect of thyroid disease, these links are where I have been doing my own research on what is to come for me.
Thyroid Nodules - Cedars-Sinai
Does the Risk of Malignancy Increase When a Thyroid Nodule is Larger than 2cm?
Risk of Thyroid Cancer Based on Ultrasound Findings
Thyroid Nodules - AAFP
Two days after I accepted a position teaching on an emergency certificate at Henry County Middle School in northern, central Kentucky, I received a call for a job offer as an editor and reporter for the Flemingsburg newspaper. I had put in my resume with the career center at Morehead State University where I had graduated just a few weeks before with my Bachelor's in English and Creative Writing. Both of these offers came from that. When I turned down the newspaper offer, my heart sank. I had taken the teaching position because I felt like I had to. How could I turn down $25,000 a year? It was more money than we had ever seen. I might not get any other job leads. Working at Big Lots furniture department couldn't last forever. Yet, I had never seen myself as a school teacher. I come from a family that have devoted their life to education. I was confident I could do the work, but I didn't really want to from my heart's standpoint. So, when I told the newspaper I was already employed, I could have cried. Patience and trust in Universe is a hard lesson to learn.
Teaching middle school taught me a lot of important things. I also have a $35,000 Master's Degree in Teaching that I'll be paying for the rest of my life. I won't ever go back to teaching in public education unless it is at the college level. I could have taken the newspaper job, potentially been happier, and in a lot less debt now. Hindsight. It must have not been for me to do right then.
I hadn't planned on being a mother either. I've written about that before. Everyone was shocked when I changed my mind and began trying to get pregnant. When I finally did give birth, I didn't go back to teaching. I had always thought that if I had children at least one parent should stay home to raise them. I had always felt like motherhood was a thing only those who are ready to sacrifice everything to be a deeply devoted nurturer should embark upon. I thought that, for me, it would have to look a very particular way in order to work. I knew me. Why have children if you have to pay someone else to raise them? I've held so many strong ideas as golden. It's a beautiful thing how life teaches us even when we are mule-headed.
That same little girl was always more at peace outside of a child's world. I didn't play much with toys, choosing books, chemistry sets, long hikes, and arts/crafts instead. I wanted to hang around the adult table and listen to their stories and talk. As a mother, I have been present and attentive, but not the mother who sits in the floor and plays for hours with toys or watches many cartoons. I'm still the me I have always been. I'm a good mother just as I am. I have a good relationship with my children. They know I love them and find my lap home. They know my words, my food, my stories, and my songs. My lap and arms will always been their home.
I still ascribe to the dream of homesteading, homeschooling, and living off the land. It just isn't doable with small children as a solo project. So, my plans have had to adjust. There are so many ways a good life can look. There are countless forms of good parents. Each of us are unique and important. I have to be open to all the possibilities. I have to be willing to learn and change my ideas based on experience and new information. I have to see myself and my fulfillment as an important piece of what it takes to be a good mother and a good example of what a woman can do in her life for my daughters. I am me and I am their mother. That is fact.
What I also am is a capable, literate, educated, backwoods, mystical, yogi, mountain woman who loves to read, have long and meaningful conversations, philosophize, study the people of the world, and to listen and share stories. I have a contribution to make and the opportunity to do it with a great group of people in a place dedicated to making sure the stories never die. Taking this job sets our family on a new path. I am having to change everything about our life, and that is a little scary. It is the right decision though. I am making it from a place of hope and I will not feel failure or guilt for making it. It is a decision I am making as my heart has opened, come to understand, and forgiven my own mother. It is a decision I am making in honor of my paternal grandmother who was a proud working mother and reminded me not to martyr myself for an ideal that was not manifesting. This decision holds in memory my maternal grandmother from whom I first learned the feeling of nurture and who was a single working mother of three. She was also a working grandmother who provided a roof for many years for five adults and three grandchildren. They all were good mothers. They all loved their children and did their best. That is all we can do. Give it our all and move forward from a place of love.
I start full time next week. I have a lot to do to prepare. There's a great deal to be excited about. My efforts will allow us to begin the process of coming off of welfare, get a more reliable vehicle, find a home that has more space for our daughters to come into their own, travel more, not have to worry as much about money, and provide a well rounded education for the girls. I need to celebrate.
Hashimoto's disease is a condition in which your immune system attacks your thyroid, a small gland at the base of your neck below your Adam's apple. The thyroid gland is part of your endocrine system, which produces hormones that coordinate many of your body's activities.
What makes it incredibly hard to give it my best shot is that because the thyroid gland is essential to producing so many other hormones that regulate my body functions and moods, when I am having a flare up, it can feel as if I'm completely losing control of my mind and body. Dealing with this disease is the hardest thing I have ever done. Harder than a 34 hour natural labor. Harder than saying good-bye to friends and family who pass on. Harder than running to the top of a steep hill 10 times fast with no break. You get the point. It's difficult. Honestly, I don't want to do it anymore. I know it is an endless battle.
Imagine having all the symptoms of a major mental illness such as manic depression, paranoid schizophrenia, psychotic depression, or even a bipolar disorder. One day you wake up with overflowing physical energy, even feeling severely anxious, with a rapid heartbeat, profuse sweating, trembling hands, and diarrhea, and you can’t stop losing weight. Then soon enough, without warning, your energy plummets. You feel like a slug, are constipated, your hair starts falling out, you gain weight no matter how little you eat, and you are severely depressed. You may have difficulty swallowing, sound hoarse, and feel like you have swallowed something that wont go down. And then, suddenly, your old symptoms return, and you feel anxious, sweaty, trembling, and panicky. This cycle can repeat itself again and again.
The thing is, I have to fight. I have things to do. This disease is something that I've been given, it is part of who I am, and who I will become. It doesn't have to be all bad. Sure, I just outed myself as someone who might display signs of mental illness. Is that the smartest thing in the world? I'm not ashamed. Many of us live with illnesses, mental or otherwise, that to folks we encounter everyday are invisible. We seem fine. We are hard workers. We get things done. We are driven. We seem in touch. The fact is, that we may be all of these things because everyday is a new struggle and we know that if we don't do it, we won't. There's no in between.
I don't think any of us who share about a chronic invisible illness are expecting condolences or accolades. It doesn't mean we are heroes for going on with life. It doesn't mean we need sympathy because our lives are over and we'll never see our dreams come alive. No, we share because we inspire one another to reach just a little higher. We help each other gather the information we need to take charge of our health. And, we want everyone to know that if we can do it, so can you. All we have is now. If we can make changes that will help us live our lives more fully and experience our bodies in a greater sense of freedom, why wait? No matter how challenging it is to change, why wait? Now, is the time when we can work. One step at a time.
This week I have driven my friends batty with my looping thoughts and stress. I left my beloved yoga mat at the front desk of the recreation center right within my eyesight. I forgot to grab my phone on a day when it was really important that I stay connected. Yesterday, I went about the day without taking my supplements, my heart medication, or my anxiety medication. I didn't realize it until I was overtaken by heart palpitations and feelings like I was surrounded by a strange glass box. When I'm having a flare up of the disease, it is like all my thoughts are in a fog. I get stuck on a topic with worry and I cannot shake it. It's as if I'm in a never-ending state of multitasking. This doesn't even begin to address the physical symptoms. It all can be embarrassing sometimes.
I will never use Hashimoto's as an excuse for my behavior or my physical issues. Yes, sometimes I may choose to share with someone that Hashimoto's is why I do certain things, or sometimes don't seem myself. It's not an excuse though. It's a reason. It's a reason to take better care of myself. It's a reason to deepen my spiritual connection. A reason to listen more to my body. A reason to be okay with a little comfortable discomfort in order to grow as a person and in strength. This is my body. It belongs to me. There's no disease stronger than me. The disease is just another teacher among many.
The man golfing above is my Papaw Hansel. He passed away earlier this year of bone cancer. My Uncle James is holding him up so he can take a swing and not fall. This is the blood from which I come. We don't lay in the bed until we have to. We grab the bull by the horns as they say. My last moment with my Papaw was my dad and I lifting him to adjust him in his bed. He looked at me with those sly eyes and looked at my dad. Dad said, "She's a brute ain't she, Papaw?" He smiled. He was proud of the strength in me. I have always been one to want to please my elders. Giving up isn't an option.
Yet, on days like today, when the sun is shining and the trees are calling, I just want to rest. I want someone to hold me, tell me its okay, tell me I'm doing a good job, I'm a good person, and I can rest. I want to breathe and feel. I want to cry and laugh. I want to be with those who accept me as I am and like me that way. Today, I'm again alone. Today, I'm going to my yoga mat with Warrior Workout and see what I can become for it's all I know to do.
Kelli Hansel Haywood is the mother of three daughters living in the mountains of southeastern Kentucky. She is a writer, spiritual explorer, avid yogi, reiki practitioner, and is living life with chronic illness. Connect with her @ Kelli Hansel - Writer & Spiritual/Yoga/Self Transformation Guide
What Clients Are Saying
Kelli's authenticity in the work was paramount in me feeling safe and comfortable in facing some challenges in my life. The practice has been helpful in me finding focus, strength, and over health and well-being. Kelli is a beautiful person and that shines through all her work.